Happy 2019! Random updates…

The reason I have not been writing as often on this blog simply that my health and life have been improving overall leading to a busier schedule.

Last year, it was discovered my synaestesia and much of my depression was actually sourced from a chronic migraine condition. I have responded exceptionally well to standard treatments of triptans, gabapentin, medical cannabis, and botox injections to the crown, neck and shoulders.

I also have rescue medications for breakthrough headaches as well as a protocol at the local urgent care for emergency Toredol, needed about once every month or two.

…As a result, my activity level has increased significantly allowing me to pursue more meaningful activities over staring blankly at my phone, immobile with what I now know was simply pain.

It is fascinating that I had zero concept I was even in pain until I felt what it was like to suddenly be without it.

I spent the better part of the last year in trial and error migraine treatments, painted my ceilings black to help (it does!), and fluctuated between days of brilliant productivity and finding myself absolutely crippled by side effects of migraine medications.

However! I finally found some excellent specialists an hour away and now my migraines are fairly under control. I believe the worst part was not knowing, being misdiagnosed with everything from narcolepsy to fibromyalgia, when really, all I had wrong was a badly healed neck fracture and ‘a perfect storm’ of other individually mild conditions that all contributed to the migraine issue, including allergies, the wrong prescription glasses, and the understanding of the link between stress triggers for my PTSD overlap with my migraine triggers.

In the Autumn I survived a pretty severe eye injury that required an ER visit, an ophthalmologist, and a very good lawyer. I now own transition lens glasses that cost more than most of my former vehicles… the lenses tinted specifically for headaches and correcting other vision abnormalities I was not aware of beforehand.

The difference is tremendous. I highly recommend not visiting mall eyecare centers in favor of real, highly skilled specialists if you also endure terrible natural eyesight. The selection of frames in store is smaller, but I found frames I like for under a Benjamin to hold those expensive corrective lenses.

My glasses were so expensive because I literally got the “everything but the kitchen sink” package… which is good, I stepped on them the first week I had them and paid nothing to get the lenses replaced since I invested in insurance coverage for my clumsiness.

Otherwise, I now play the viola in three orchestras, two in Reading, and one in Allentown as weather permits.

I also somehow managed to get on the board of directors of the Reading Philharmonic; which is a really fantastic thing since I am finally using my Americorps Vista experience with the non-profit sector in a productive capacity. I never thought that would happen, but I am proud of this accomplishment, especially coming out from clinical agoraphobia for a few years.

Ed and I joined a gym where I can finally swim, and I do, daily, for one to two hours every day, and finally, I was just scouted to write editorials for a dispensary website; I am in the process of working with their editor to get my first article up shortly.

Otherwise, my tie dye is doing well, I am getting out more than I have in years, and feel pretty great overall.

Enough to live in a house that warm, safe, and clean (except for husky fluffs we sweep out daily)

I have finally surrounded myself with positive, supportive people and our little animal sanctuary here in Exeter is a pretty chill place. Our family of rescue animals is four cats, two dogs, and a snake.

Ed has his rabbits we purchased for $25 each who work as great vegetable garbage disposals/fertilizer producers.

Also, they got out a few times and in total we found homes for 43 baby rabbits before we were able to finally stop the neighborhood kids from leaving their hutch open.

Our wild rabbits are pretty remarkable cross of Flemush giant and Pennsylvania wild bunny. Our local rabbit population is likely giving our local predator population high cholesterol.

Our garden resulted in an epic growing season that resulted in baking and selling an awful lot of pumpkin pies, but hey, I learned a skill.

I also finally learned how to make a loaf of bread from scratch that is good enough to use for sandwiches.

So, when I am not on here, I am just enjoying being productive, not in pain, and just striving to live the most fulfilling life possible.

Today, I am recovering from a sinus infection thing I accrued after my root canal, so this post is simply burning off the prednisone here so I can be more focused to concentrate on my upcoming article.

I promise, if my editorial becomes published, I will post the link…and if it does not get published, I will still post it here somehow since I am incredibly proud of it as one of my best pieces I have ever created.

Overall, I feel positive and content. My episodes of PTSD on average now last four days or less, and I finally feel like life is falling into a solid, healthy pace. Having accessible medical marijuana has also been essential to my continuing recovery of both my mental and phtsical health.

I am presently on 60mg of Charlotte’s Web CBD oil, and even with this cold, I still feel well enough to want to go to the pool. (Or that could also be the prednisone, or both.)

I hope your 2019 holds as much promise and positive energy as I have experienced, and if not yet, I hope it happens for you soon!


3 Responses to “Happy 2019! Random updates…”

  1. It is fantastic to see that you are doing so well. Thank you for sharing. I hope the sinus thing clears up quickly.

    • Thank you for your kind words, and for the sinuses… and me too! Sudafed and mucinex have been a steady part of my diet the past week, but I am improving daily!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: